Wednesday, February 3, 2010

And we thought the first day was crazy...

Day 2 was even crazier than the first! My day started off well because they started unhooking everything so I could get out of bed. I was thrilled to be able to get up and get a shower. Brian and I didn't really like my day nurse though. I had her on Monday and Tuesday and we weren't impressed. I had to ask every time for my pain meds and she still wouldn't bring them on time. She wasn't the most personable and kept taking Gavin away without any warning or explanation. This really frustrated and upset us. She started off Tuesday the same way. At about 8 she came in and said it was time for his circumcision and took off. I had to stop her to ask a few questions and give him a kiss goodbye. They said it shouldn't take too long and we should see him soon.

About an hour later, Dr. Voyles came in to talk to us. He said that Gavin was a good looking boy, but that he had several things to talk to us about: 1) His breathing concerns from day 1 were no longer a problem, but to just keep an eye on it; 2) Gavin's circumcision went off without a hitch! He was a trooper and didn't even really cry:) 3) When Gavin was born, he had a huge mark on his right leg. The nurses and Dr. Crutcher seemed to think that it was just a Port Wine birthmark, but said that Dr. Voyles would be able to tell us more tomorrow. When we were looking him over, we noticed that he also had spots on one of his toes, his back, head, and scrotum. Dr. Voyles told us that it wasn't a birthmark, but instead hemangiomas. Basically, it is an overproduction of blood vessels. Unfortunately, it was the worst case he had ever seen and he is setting us up with an appointment with a pediatric dermatologist. Because there isn't one here in Evansville, he said we would go to the local Riley office and they would do a video conference. Based on that, they will decide if we need to go up to Indy or not. We were told that it will get much worse before it gets better. I guess within the first 6 to 12 months, it will get bigger and more raised and then start a slow regression. We were assured that 100% of all cases disappear by 10 or 12 years old. Laser surgery is an option but at this time Dr. Voyles didn't think he would need that because the spots aren't on his face where his vision could be effected. I am anxious to actually speak to the dermatologist and see what they have to say; 4) As if all of that wasn't enough, Dr. Voyles found another concern. Gavin has a sacral dimple. Basically, it is an extra dimple on his butt. The concern was whether or not it was connected to the spinal cord and if it was, whether or not it was an open hole. If the spinal cord wasn't closed, that could mean leakage of spinal fluid. Dr. V scheduled an ultrasound. Although we had to wait several hours for the results, everything appeared to be normal. The sacral dimple and spinal cord are connected by a fibrous band, but it shouldn't cause him any problems. If we notice any leaking, we need to contact the doctor immediately.

Obviously, Brian and I were quite mentally exhausted by the end of the day. Thankfully, Gavin is an excellent nurser and feeding hasn't been a problem. Brian traded off with my mom around 4:30 so that he could spend the night at home with Macie. I know that it was good for Macie, but it was also good for Brian. He needed to get away from the hospital for a while!
In this picture you can kind of see the marks on this leg.

We were blessed with more visitors today:
My cousin Danielle
My cousin Wendy
Aunt Alice
Lori and Kaylee came too but Kaylee had to stay in the lobby
Aunt Beth and Uncle Wil
Aunt Katie
Other people who visited that we didn't get pictures of were Drew, Allie, Mom, Brittany, and Josh

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